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Review for Myositis Support And Understanding Association, Lincoln, DE, USA

Rating: 5 stars  

MSU has been indispensable for me and my family. I was recently diagnosed with polymyositis and was scared and felt very isolated. I needed to know more about my illness and what I could do to help myself and my family understand it. and what we could do to help me through it. I immediately went online in search of answers. By the grace of God I found MSU. Through them I received so much education concerning this illness and types of treatments I could anticipate. I now feel better informed to advocate for myself concerning this disease. I understand my symptoms and what I need to do to support myself in getting better. I go to the MSU website almost every day researching science backed info. I join sessions online whenever possible. I cannot even begin to imagine trying to handle all the various aspects of this rare disease without the support of MSU. They have been a lifeline for me and my family.

Role:  General Member of the Public