My Nonprofit Reviews
Lynn W.2
Review for , , ,
MSU is a community where, as our Founder Jerry Williams says, “you come for support and stay for family.” MSU provides support and services to help ease the burden of patients, care givers, and families affected by the disease - financial, emotional, physical. MSU is "open" 24/7 for support worldwide and is one of the few rare patient organizations who provide financial assistance for medical expenses and household emergencies. As a patient with myositis, I was inspired by his example and I have found purpose in volunteering to make MSU a community that continues to lead with love and provide critical resources for families living with this insidious disease.
Review for Myositis Support And Understanding Association, Lincoln, DE, USA
Connecting with Myositis Support And Understanding (MSU) was like finding family - people who understood the journey and burden of this rare chronic disease. MSU provides support and services to help ease the burden of patients, care givers, and families affected by the disease - financial, emotional, physical. MSU is "open" 24/7 for support worldwide and is one of the few rare patient organizations who provide financial assistance for medical expenses and household emergencies. I found deeper meaning and purpose to my life when I found MSU and I am proud to be volunteering to help live the mission of this organization to improve the quality of life of myositis patients.
Review for Myositis Support And Understanding Association, Lincoln, DE, USA
When I was newly diagnosed with a rare autoimmune disease, Dermatomyositis, Myositis Support and Understanding helped me work though my fears about what the future held for me and provided compassionate and caring support that helped me realize I was not alone with my feelings. Come for the support and stay for the family.
Review for Myositis Support And Understanding Association, Lincoln, DE, USA
Since my diagnosis in 2015 with Dermatomyositis, Myositis Support and Understanding (MSU) has become a second family to me, providing the support and camaraderie to help me adapt to my new life with a chronic illness. Volunteering seemed like the natural way to support the mission of the organization. It has given me a great sense of satisfaction to watch this organization grow and thrive and make a difference for the myositis community.
