My Nonprofit Reviews

My grandson, Ben, has an SCN2A mutation. He has seizures, autism and intellectual disability due to this condition. We have benefited immensely from the FamilieSCN2A Foundation which provides us with support, knowledge and hope for a better future with new treatments and a cure! I attended the Boston conference this year and was overwhelmed with feelings of hope and support!

This foundation has provided a wealth of information and advice for the care and well-being of my 10-year-old grandson. We have greatly benefited from the personal experiences of so many caring families and professionals who make up this group. It means so much to know we are not going through this alone!

At the time my grandson was diagnosed with an SCN2A mutation almost nine years ago there was little hope for successful treatments, let alone a cure. Continued seizures and autism were expected. Giving up and accepting this was not an option so this group gradually formed to support each other and share experiences. It has now grown into a strong foundation actively promoting new research and impacting lives daily. I am so inspired and grateful to be a member of this brave community of warriors. I have hope for my precious grandson!