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suzanneschust

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1 reviews

Review for FamilieSCN2A Foundation, East Longmeadow, MA, USA

Rating: 5 stars  

At the time my grandson was diagnosed with an SCN2A mutation almost nine years ago there was little hope for successful treatments, let alone a cure. Continued seizures and autism were expected. Giving up and accepting this was not an option so this group gradually formed to support each other and share experiences. It has now grown into a strong foundation actively promoting new research and impacting lives daily. I am so inspired and grateful to be a member of this brave community of warriors. I have hope for my precious grandson!

Role:  Volunteer