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Review for FamilieSCN2A Foundation, East Longmeadow, MA, USA

Rating: 5 stars  

The FamilieSCN2A Foundation was set up by parents who stood up to fight back against this disease not only for their children, but for all those diagnosed now and who will be in the future. This was not a small undertaking and their work and dedication to the cause spilled out into the broader rare disease space causing a ripple effect of more families standing up to fight back and more foundations forming. We are honored to be part of such a Passion and successful group of individuals.

Role:  Board Member