My Nonprofit Reviews
bakercape
Review for Solve Me Cfs Initiative Inc, Glendale, CA, USA
The CAA has been underperforming and poorly representing patients as an advocacy and educational organization for many years. Much of the donated money goes towards paying an overinflated salary for the CEO at the expence of advocay and research initiatives. The CEO also is not well qualified eduactionally ( bachelors degree) to be leading this non-profit.
In summary it is a poorly functioning org which has no measurements in place for sucess and an overpaid CEO.
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I've personally experienced the results of this organization in...
Poor educartion of doctors and poorly targeted research.
If I had to make changes to this organization, I would...
Hire a new CEO and research director.
Review for Nevada Center for Biomedical Research, Reno, NV, USA
The WPI is the only real hope in the world at the moment for 17 million patients with ME and Chronic Fatigue Syndrome. They are nothing but pure excellence.
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I've personally experienced the results of this organization in...
This organization has renewed my hope that I will be well again someday after 24 years of illness.
If I had to make changes to this organization, I would...
Find a way to get them more funding.
Review for Pandora Org, Traverse City, MI, USA
PANDORA is a charity which serves a very underserved and often neglected population of people. This group has advocated for both adults and children with NueroendocrineImmune disorders and is working hard to create only the second research and treatment center for several understudied and not well understood diseases.
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I've personally experienced the results of this organization in...
The spread of education and awreness of my illness.
If I had to make changes to this organization, I would...
Make sure they had more fundraisers.
