My Nonprofit Reviews

Six months after I was diagnosed with Parkinson's disease, it was suspected that I had MSA. This diagnosis was subsequently confirmed. My husband and I knew nothing about this disease. We did a google search and we quickly found out about the MSA-Coalition. We called their number and soon thereafter we were called back. Not only were we given important information about the disease but we were given the time to ask all of our questions. Since then we have attended two of their annual conferences. Each of them was very well organized and included speakers extremely knowledgeable in the field. We were able to make contacts with a number of people which have remained a great support to us. Further, the MSA-coalition keeps us informed regularly of important research and/or other important developments about MSA. Through the organization, I was able to join support groups on line and on the telephone (monthly meetings) with other MSA patients.