My Nonprofit Reviews

I continue to appreciate CCF and the many resources I have available as the parent of a young adult with hypertrophic cardiomyopathy and an AICD. I am armed with knowledge to help my son make good decisions about his health so he can feel more empowered. Especially with the pandemic, we've turned to CCF for information about COVID-19's affect on cardiomyopathy.

My son has hypertrophic cardiomyopathy and an AICD. By staying connected with CCF, I've had access to so many resources. The newsletter is full of recent research findings. I've participated in informational webinars that I would not have had access to otherwise. I've connected with parents across the country whose children are experiencing similar things and have received reassuring emails and been given great ideas for coping! And now that my son is about to graduate high school I've turned to CCF for resources about transitioning to adulthood.