My Nonprofit Reviews

I’m not exaggerating when I say that the Children’s Cardiomyopathy Foundation saved not only my son’s life but mine as well. I have been involved with CCF almost from the time it began. My son, Nathan, was diagnosed with dilated cardiomyopathy over 21 years ago- before CCF existed. My husband and I felt so alone. Living in a small town in Oklahoma, we didn’t know anyone who had dealt with anything remotely similar. When we finally found CCF on the internet Nathan was nearly 5 years old. Through CCF we found out how important it was to find a cardiologist who specialized in pediatric cardiomyopathy. The doctor Nathan had been seeing wasn’t treating his disease accurately and CCF gave us the name of a doctor who is one of the best for this disease. We credit this doctor with saving Nathan’s life several times. CCF also gave me the support system that I desperately need to help with the struggles of having a child with this disease. As much as my friends and family want to understand, they just don’t. The parents I have met through CCF help me keep going when times are tough. Nathan is now a junior in college and even though technically he is no longer pediatric, I will always stay involved with the Children’s Cardiomyopathy Foundation.