My Nonprofit Reviews
CJCORD
Review for The Myasthenia Gravis Association of Western Pennsylvania (MGA), Pittsburgh, PA, USA
I have only been associated with MGA OF WPA for about 3 years. Fortunately I did not get MG until later in life so have not had to deal with so many issues as those much younger. But at any age, I have learned that working with an MG patient is a very personal, one-on-one experience. There is no "one size fits all" for MG. Being older, I have other ailments creeping up on me that need to be worked around MG and the many meds one must take to contain this disease. The head nurse has helped me make so many decisions and has always taken as much time necessary to reassure me during times of doubt. Although I do not live in the area and have to travel some distance, it has been worth it to make MGA OF WPA my main place for doctoring. The doctor who has treated me has made special arrangements at times when I felt particularly vulnerable and needed guidance. When I've had questions, he has returned my calls quickly. I don't think I would have learned as much or as quickly about MG had I not found this association because, living in a rural area, there are few doctors who are as learned as the ones I've worked with in WPA.
More Feedback
I've personally experienced the results of this organization in...
making specific decisions on what meds are better suited for me to control the disease.
If I had to make changes to this organization, I would...
make it more accessible to other MG patients. I feel that there needs to be more outreach for those needing guidance that they cannot get in many communities. This organization would help so many more people if they were able to reach more people.
