My Nonprofit Reviews

Although having had a nursing career spanning four decades, I had never heard of MSA until given this diagnosis in May 2018. Even now, I have yet to meet a person, face-to-face, who has this diagnosis.

"Defeat MSA" has become my lifeline, providing CONNECTIONS to help maneuver this rare disorder - connections to the loaner closet for medical equipment, connections enabling me to participate in a teleconference with neurologists attending a professional convention, connections to participate in a clinical trial for an MSA drug treatment, and connections with numerous MSA resources around the globe. Most importantly, social media connections, via "Defeat MSA", have helped me tap into MSA patients around the world who have become a wealth of information, as well as, my cherished MSA family.

Without these valuable connections, MSA would be a long, lonely, terrifying journey. Thank you, "Defeat MSA"!