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Sara F.

361 profile views
1 reviews

Review for Lissencephaly Network Inc, Fort Wayne, IN, USA

Rating: 1 stars  

Does this organization even exist anymore? Their website has closed and there hasn't been a newsletter or convention for 5 years. I'd be careful donating to this organization!!!

I've personally experienced the results of this organization in...

the conventions they did hold were well organized and you had access to doctors doing research on lissencephaly.

Ways to make it better...

what they promised was delivered (newsletters, etc.).

When was your last experience with this nonprofit?


Role:  General Member of the Public & Have child with this brain malformation.