My Nonprofit Reviews

I was Diagnosed with MSA-C,Dec.17th 2016. I had a medical background but never heard of MSA. I did my research and tried to gain as much knowledge as I could. I reached out to several people, all people posting on MSA sites. Defeat MSA was a place that I felt so comfortable expressing my fears, my bewilderment and being accepted. Phil responds immediately to me questions and offered suggestions as to where I need to go if I have questions that he cannot answer. Though honestly Phil has most answers as his brother pasted with MSA and Phil was his personal caregiver. When his brother passed, Phil made it his live long purpose to help patients, family members and caregivers not only with comfort but to do everything within his power to help fine a possible cure. It did not happen for his brother, as his brother’s progression was very quick. I have had the great honor to speak with Phil several times, he is the most generous caring individual I have had the honor to know. His non profit extends beyond just the Disease. He is going world wide so other people who have no help or a place to share their journey , Phil is opening up the door for them so they are not alone. He also has a loaner closet of special medical equipment that is on loan to any MSA patient who may not have the funds to purchase or inadequate insurance coverage. He also has the MSA shoe that again has traveled the world bringing awareness of MSA. Phil also has the MSA hub where any one can sign up for. That informs you of upcoming seminars, discussions groups etc. I feel that Phil takes a special interest in all of us. We have become like family. For me I know I can turn to him morning, noon and night. For a patient who is dealing with this horrific disease, I cannot think of a greater act of kindness or generosity then Phil Fortier gives us.