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carolmeerschaert

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1 reviews

Review for The National Organization For Rare Disorders, Danbury, CT, USA

Rating: 5 stars  

Being a NORD member has helped AXYS ( genetic.org) by giving us viability. Two organizations, a student group in Texas holding a Rare Disease day and an advocacy group found us just this week.
I was honored to attend the NORD Summit in DC as a scholarship recipient. The sessions were top drawer, but being able to connect with other leaders of orgs was priceless. Having discussions on databases, boards and volunteers brought AXYS valuable insight.
The website, webinars, and reference materials all make being a part of NORD a must have for small organizations such as AXYS!

Role:  Professional with expertise in this field