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Natacha E.

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1 reviews

Review for The National Organization For Rare Disorders, Danbury, CT, USA

Rating: 5 stars  

I'm one of the leader of a non-profit organization for a rare disease. The National Organization for Rare Disorders (NORD) has been helpful for our organization for years. NORD helped us establish a natural history registry, NORD helped us with multiple organizational aspects of our organization. NORD also offers multiple educational conferences and webinars. NORD plays an important role connecting rare diseases foundations with the pharmaceutical companies and other agencies like the FDA.

Role:  Professional with expertise in this field