My Nonprofit Reviews
Carol L. H.
Review for No Stomach For Cancer, Madison, WI, USA
My twin sister, my niece and myself tested positive for CDH1 genetic mutation. Within 5 months all 3 of us had total gastrectomies with malignant pathologies, despite having benign diagnostic test results prior to our surgeries. Our siblings and children have yet to get tested. Through continued research it’s my hope that the generations that follow us have more precise diagnostic screening, more treatment options, a higher survival rate and a cure.
The information, support and guidance from No Stomach For Cancer has helped us along our journeys learning to live without a stomach. This site has assisted us with our decisions and have allowed us to survive.