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1 reviews

Review for Systemic Jia Foundation, Cincinnati, OH, USA

Rating: 5 stars  

My son was diagnosed with SoJIA in Oct 2018, and at that time, we had no clue about this disease and how this could change our lives. Least did we know how complicated things could get if not treated aggressively at the early stages. This forum helped us tremendously in understanding the medications available in the market for curing this disease and to discuss them with our rheumatologist. We Had lots of questions and they were seldom clarified by the parents in the SJIA group, based on their own experience.. And there are always some positive comments which help us feel better during the difficult times. And not to mention this is such an active group and parents promptly volunteering with their valuable suggestions.. a big thank u to all the members and participants and a special thanks to the ppl behind starting such a forum.

Role:  General Member of the Public