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rminerva

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1 reviews

Review for Systemic Jia Foundation, Cincinnati, OH, USA

Rating: 5 stars  

The SJIA Foundation has without a doubt saved my daughter's life. They are truly committed to their mission and work to help educate and serve the SJIA community. When my daughter was diagnosed with the life threatening complication MAS in June 2019 they worked quickly to get me valuable information and to put me in touch with doctors in Cincinnati who ultimately saved her life. Their annual conference educates and networks parents and doctors from around the world. The Next Gen Conference hosted by the SJIA Foundation works to create awareness of patient needs and helps connect the dots between patients, doctors, FDA and pharmaceutical companies to hopefully find a cure for our children. We are grateful for all that they do! ❤️

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