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Sara Fuller B.

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1 reviews

Review for Systemic Jia Foundation, Cincinnati, OH, USA

Rating: 5 stars  

I discovered the Systemic JIA foundation after my daughter received an SJIA diagnosis in 2019. One of the immediate benefits that was hugely impactful for us was the parent/caregiver forum the Foundation supports. Immediately, we were surrounded with a wealth of caring and knowledgeable real-time support to guide us through the initial steps of beginning treatment and dealing with school and social obstacles. After our initial frenzy, the Foundation has now become our go-to resource for the latest in medical treatment, clinical trials, and advocacy opportunities. The annual conference is giving a loud voice to our children within the Rheumatologic medical community, which will also impact the lives of thousands of kids to be diagnosed in the future. This Foundation's work has a remarkably wide scope of support for SJIA, all of which is executed brilliantly.

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