My Nonprofit Reviews

It took us 2 years to find the right doctors and get the right diagnosis. Two years of ER, ambulance and ICU stays. When we finally found the right doctor and the right diagnosis we were burnt out and then... then we got lucky we found this organization we found other families who knew exactly what we were going through. We found Jennifer and her wealth of info and unending support. Cure TBM is a beacon of hope and a circle of more than friends. This condition is terrifying and so badly misunderstood by so many doctors. Jenifer and Cure TBM are making incredible strides in connecting patients, resources and medical professionals in a way that supports patients and their medical teams. That allows for research while supporting those suffering today. I believe in TBMs cause and I’ve seen the wonders that it can do. We, my family wouldn’t be where we are today without this organization.

Thank you Cure TBM!

My 2 year old son was diagnosed with TBM in May and I just happened to find this website after meeting another TBM mom in the hospital. She turned me on to this group and it is amazing how much love support, kindness, tip and tricks they’ve provided to me and my family. We were feeling so alone in our struggles and now we have an incredible support system around the globe.