My Nonprofit Reviews

Narcolepsy Network's Youth Ambassador Program was instrumental in developing the self-advocate and advocacy skills for navigating narcolepsy effectively through all the challenges and opportunities of living with narceolpsey as a child and an adult.

Our daughter has flourished with the support, outreach and peer participation in this unique program for youth and young adults with narcolepsy. The organization as a whole provides the opportunity to meet others with narcolepsy of all ages with weekly virtual support groups, monthly educational webinars and in person seminars (when safe to do so), as well as governmental and legislative participation opportunities in order to positively affect the narcolepsy community locally and nationally.

Because our daughter was diagnosed with narcolepsy and cataplexy at age 10, it was suggested by her doctor that we contact Narcolepsy Network for support. For the past 9 years we have been members and supported by Narcolepsy Network with informative and fun conferences, educational newsletters, and most importantly the Youth Ambassador Program that our daughter became involved with at age 15. She has been a spokesperson and advocate around the nation as a Youth Ambassador for the past 4 years. The Youth Ambassador program has given her inspiration, education and empowerment. Narcolepsy Network has provided a comfortable community where our family can flourish.