My Nonprofit Reviews

My grandson was diagnosed with NF1 last year. I, of course, did all the things that the doctors tell you not to do and researched it myself. Initially, I was distraught by viewing the images of people who have the disease. However, one site I came across was NF Midwest which calmly explained the disease and gave me a feeling that there was a great deal of hope in treating and possibly eliminating this disease. I have participated in the Great Step NF Walks and met other people going through the same experience. I have attended other NF Midwest events. I know NF Midwest have seminars where recent developments and treatment of NF are discussed as well as related sibling issues. I plan to attend one these seminars in early November. However, the best thing I like about NF Midwest is that it gives support and information to my daughter and son-in-law. They are very enthusiastic about their support for NF Midwest and it helps them with the care of my grandson. John Wasilewski