My Nonprofit Reviews

I've had the opportunity to attend two Global Genes events in 2019....Rare in the Road in Sioux Falls, South Dakota - a Global Genes advocacy partnership with the EveryLife Foundation and also Global Genes RARE Patient Advocacy Summit, an annual event in Southern California. Both events leave you feeling inspired and enthused. In particular, the Summit is a rare disease networking mecca - with opportunities to network built into the conference schedule, as well as many informal opportunities as well. I left this event with a list of must-do tasks in order to help my patient organization move the needle toward their mission... I'd say that was time worth spent away from home to walk away with many new contacts in the rare disease space, and a list of ideas that I could easily implement once back home!