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VD5-1-2018

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1 reviews

Review for Vestibular Disorders Association, Portland, OR, USA

Rating: 5 stars  

I was initially misdiagnosed with BPPV. When it wasn't quickly 'cured' by therapy, I was given a second diagnosis of Vestibular Neuritis. After 2 months, it was determined I had permanent damage to my left inner ear. At the end of 3 months, I was defeated, financially depleted, and still sick!! All the while, 3 inexperienced Doctors discouraged me from reading up on VN, BPPV, PPPV, MD or join fb groups, etc. Apparently, there is a fear that you can make your Vestibular Disorder worse by being informed!! Through VEDA, I found links to videos to treat visual vertigo ( shadows and light could send me into a spell ), DAVT, and other adaptive measures that ended up helping me tremendously. My VT was great ( Docs- not so much ), however it was VEDA that gave me hope, a measure of control in my recovery, and taught me to advocate for myself! I hope through VEDA, all med professionals will find access to training for this horrible misunderstood illness!

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