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tarapalage

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2 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

The National Tuberous Sclerosis Association Inc has been instrumental in many ways for my family. As a parent of a child with Tuberous Sclerosis Complex (TSC), the services provided have helped me navigate medical treatments for my son as well as provided valuable emotional support as a caregiver. Without their help, I do not feel my son would be where he is today. I am eternally grateful for everything the National Tuberous Sclerosis Association Inc provides to the TSC community.

Role:  Client Served
 

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

As a parent of a child with Tuberous Sclerosis Complex (TSC), I found the support I so desperately needed from this organization. The fellowship received from those who share a similar journey allowed me to flourish as a mother, an advocate, and a mentor. The leadership of this organization drew me to volunteer to host events for others on the TSC journey and to advocate for research funding. Knowing this nonprofit organization started with just 4 mothers 45 years ago who aspires for fellowship, education for doctors, and better treatment options for their children, I am honored to be a part of it all these years later.

Role:  Client Served