My Nonprofit Reviews

I was misdiagnosed for nearly 30 years. My last extreme flare made me fear for my life. I pursued answers with renewed vigor. Once we learned what was happening to my trachea and bronchi, my physician just continued with the prednisone-antibiotic regime. Through the TBMAF website I learned so very, very much and also learned from others suffering with TBM. I shared this information with my physician and now we have nearly controlled my extreme flares for two years. I was hopeless but that all turned around. At least for the time being. The support, love and knowledge of those who created this Foundation is so generously shared. They work tirelessly to raise funds to discover a cure. We need a cure.