My Nonprofit Reviews

CureTBM was started by Jennifer Champy to raise awareness about TBM (Tracheobronchomalacia) and raise funds to be used for research into this misdiagnosed and misunderstood disease. As well as the foundation Jennifer also started a facebook support group where people could go and ask questions, share their stories and support each other through their diagnosis and treatment of TBM.
I was diagnosed 8.5 years ago and have been a member of the support group for 7 years.
I live in hope that one day the researchers will find a cure for TBM and no more children or adults will have to struggle to breath. Help us raise funds so we are able to give breaths to the breathless.

This non-profit helps so many in many different ways. As well as there website that is a wealth of information on TBM, they also have a support group. The support group is amazing and has brought many people together that understand how it feels to have TBM.
Over the years money has been raised which some has been used towards research for a Cure for TBM.
When Jennifer Champy started the non profit there was very little known about TBM and treatment options for those inflicted with this condition. Even though more is known now there is still a long way until there is a Cure for TBM.

After 18 months of being diagnosed with TBM and daily Google searches on the internet I finally came across a site called curetbm.org. Jennifer Champy the founder works tirelessly raising awareness and funds for research for a cure for TBM.

It has been 5 years since I was diagnosed with TBM. I live in Australia and found cureTBM.org 18 months after my diagnosis. I spent that time researching and finding very little information especially for adult acquired TBM. Jennifer Champy works tirelessly raising awareness of Tracheobronchomalacia and raising funds for research into a cure for TBM so others don't have to endure the daily struggles that we do now. Ongoing funding is needed so the researchers can continue the work they are doing to find a cure for TBM.

CureTBM foundation and support group is an excellent way to get information on TBM. Whether you have been diagnosed or looking for places near where you live to get treatment, the CureTBM foundation and support group is an excellent place to start your search. CureTBM is continually raising funds to enable research into one day cure TBM.

I was diagnosed with tracheobronchomalicia in 2016. I live in Australia and for 18 months I didn't know anyone who had this disease until I found CureTBM foundation and reached out to Jennifer Champy. She told me about the support group and I joined and have had the support of other members who truely understand what it is like to have TBM. I had Tracheobronchoplasty in April 2018 the first adult that we aware of that has had this surgery in Australia. The work that BIDMC is doing in research will improve the diagnosis, treatment options and hopefully one day a cure. They need your help to fund the research.
We need your help to breathe.