My Nonprofit Reviews

diane112448
Review for NBIA Disorders Association, El Cajon, CA, USA
I have been privileged to be a part of NBIA from the very beginning. My sister’s only daughter Kimberly was diagnosed when very young with this devastating genetic condition. Her mother was ready to move heaven and earth to help her daughter. And she did! Patty Wood, my baby sister ,started this organization over 20 years ago. She and Dr. Hayflick were the pioneers who began the search for a cure. I have attended all 10 of the international conferences. It has been an honor to meet the bravest parents, the most kind hearted Doctors and researchers, the sweetest children in the world. The conferences are a source of joy and comfort to all who attend. Always praying for a cure