My Nonprofit Reviews
Review for Autoinflammatory Alliance, San Francisco, CA, USA
The Autoinflammatory Alliance saved me from a lifetime of pain, sickness and reclusion. I wasn’t alone in my disease.
After a lifetime of suffering and 13 specialists that couldn’t help me I found the symptom chart on their webpage and finally had a place to start. After showing my Doctor (who had never heard of CAPS), she ordered a couple labs and within a week I was starting Kineret. The first injection made a huge difference in my chronic symptoms and the second day I was almost symptomless. For the first time in years I didn’t hurt.
This community has become my family, the people I turn to first with questions about my disease. It is filled with wonderful, experienced people. I would be so lost without it and it’s pivotal to keep it going strong. The amount of people who rely on this community is huge. It saved my life. This was my whole body before diagnosis... along with chronic eye inflammation, and painful swollen joints. This group gave my kids back their mom and my husband his wife. I can’t say enough about how much it has done for me. ❤️