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Review for Autoinflammatory Alliance, San Francisco, CA, USA

Rating: 5 stars  

When my son was diagnosed as the only child in the country (UK) to be diagnosed with his illness, we got a story in the local newspaper. Because Autoinflammatory Alliance had Google alerts for rare autoinflammatory conditions mentioned online in the press, they immediately contacted me to offer support and put me in touch with other people with the same disease in America. An amazing organisation.

Role:  Volunteer