My Nonprofit Reviews
Tom W.2
Review for Lipoprotein a Foundation, San Carlos, CA, USA
A relative few of 'us' even get diagnosed for high LPa. Even fewer of us find the resources to begin treatment. This site provides current and ongoing information for treatment resources, facilities and practitioners who are equipped to manage LPa. I reference the Foundation with the Cardiologist I see along with the Endocrinologist. I have printed research articles from the site on several occasions or get reference info to forward to them. Apart from that aspect, consumers can gather to commiserate on treatment, care, resources, insurance and the like.
The photo is me going through apheresis for LPa removal.
Tom, thank you for sharing your very personal journey with high Lp(a) and your photo. A picture is worth a thousand words and to know you do this procedure every two weeks and endure 2 hours plus of plasma apheresis and probably have to travel to get to this site is humbling. This is the reason we started the foundation to find answers for our families and ease the burden and anxiety for the families.
