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hanksmom

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1 reviews

Review for Autoinflammatory Alliance, San Francisco, CA, USA

Rating: 5 stars  

I cannot begin to thank The truly incredible moms who started the autoinflammatory alliance. I am still totally in awe of your work and dedication. Around 2 years of age, our son Henry began having daily unexplained fevers, (sometimes a few times a day),extreme fatigue, episodes of emesis, ,joint pain and intermittent rashes that lasted 9 months. His language development just stopped, his teachers always commented he’s just not himself. We were totally lost, upset after seeing specialist after specialist at one of the best universities in the country for well over a year and told our child just ran hot, we refused to stop digging. It wasn’t until we heard about the AA, and an incredible autoinflammatory clinic/ physician in Cincinnati, that we were able to finally begin to properly treat and bring back our sweet energetic son. We are thrilled that AA is committed to helping drive critical research, gain the latest testing information and most importantly educate patients and physicians so that these children do not have to suffer for years. Thank you from the bottom of our hearts

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