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stever444

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1 reviews

Review for The Oral Cancer Foundation, Newport Beach, CA, USA

Rating: 5 stars  

I am a long-term survivor of a stage four oral cancer. I have been engaged with OCF since my early days right after treatments when I was having difficulty with swallowing speaking and all the aftereffects that those who have been radiated know about. The people, web site, and support group at OCF were instrumental in keeping me informed, and understanding work arounds for some of my most difficult problems. I was even able to call the founder of OCF on a personal line and discuss issue with him as he has been out of the lecture circuit talking about the disease and is highly informed and connected to others in the oral cancer world that might offer me assistance. Ten years have elapsed since those days. Today I have new problems that many of my doctors do not know how to deal with, all related to my high dose radiation treatments. I again turned to OCF, and again found answers and support. OCF has now been part of my life for a decade and a half when I needed them. They have always come through for me with support and answers, and importantly options that help me make better informed decisions. OCF is not a large entity, and it is significantly underfunded considering the many important things they are engaged in. I used to think that bigger was better. But this organization is now the destination of my donations because they get things in the oral cancer world done, when others with fancy websites have little to show for accomplishments in the oral cancer world. OCF is a gift. I urge others to please donate to them, they deserve to be around into the future.

Role:  Client Served