My Nonprofit Reviews

We are a family with 3 children and one has the Bainbridge Ropers Syndrome. We went to the conference in July In Michigan organised by the Asxl Rare Reasearch Foundation. This conference has been so rich and helpful for us. We learnt many things to help us manage the disease of our son. It has been helpful for the whole family. The organisation was perfect and the conferences gave us precious informations for us. We also had the chance to meet with other families like us which was so important. Many thanks for your help