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Review for Hydrocephalus Association, Bethesda, MD, USA

Rating: 5 stars  

I found out about the Hydrocephalus Association (HA) while in my darkest days having hydrocephalus, a condition I was born with. At age 22 I was struggling with side affects from a surgery and no answers as to why this was happening. I needed someone who understood what I was going through because I felt so alone with my symptoms. As I was searching for a peer support group, I came across the Hydrocephalus Association website and the wealth of information they offer to patients and families with hydrocephalus. I was so hopeful when I came across their community network section and saw that there were groups across the US who meet in person to talk about life with hydrocephalus. While I was bummed that there was not one in my area, I emailed the wonderful staff at HA who helped me to get one started. It has been 5 years since that time and even though I was born with this condition, I have learned so much about my condition from the people I have met through HA. I am thankful every day for the joy and abundance HA has brought into my life! I have found my true calling in life because of HA.

Role:  Volunteer