My Nonprofit Reviews

ASXL Rare Research Endowment Foundation has been great the last two years in organizing the second ASXL conference. We were able to attend this year thanks the travel scholarship we received. The event was extremely helpful for us helping us leaning more about this rare condition and also for having the opportunity to discuss with the nation experts in the ASXL associated conditions. The opportunity we had of meeting other families affected by this rare condition has been instrumental in our learning of their management of several co-morbidities associated to Bainbridge Ropers. We are extremely grateful for all the resources provided to us in addition to the travel scholarship, like meals, hotel discounts, etc.
Looking forward to next year conference!!