My Nonprofit Reviews

The CRF is a group of ordinary people with extraordinary passion, drive and hope that has worked tirelessly to find a treatment to slow down the progression or cure CHM. During my tenure in the last 10 years, CRF has dedicated its resources to find the best & brightest researchers, clinicians and institutions in RDD to help us reach our goals and fulfill our mission, while maintaining a small family-feel when supporting, educating and caring deeply for one another.
This unique group has become my dearest band of friends and go-to patient advocates. Because of the dedication given so freely by many, I'm confident that a treatment/cure is in our near future!