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sarah_hoover81

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1 reviews

Review for ASXL Rare Research Endowment Foundation, Falmouth, ME, USA

Rating: 5 stars  

I have to say a few words about the ASXL conference the ARRE foundation hosted. Our son has Shashi-Pena Syndrome (ASXL2). We had such a great time meeting other families. It was a great encouragement to see other people dealing with some of the same health concerns and behaviors that we deal with on a daily basis. The speakers were informative and helpful. The food was delicious. The environment was supportive, accepting and encouraging.
We are so blessed to be able to go-especially for free!
We hope to be able to go to future conferences as well.

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