My Nonprofit Reviews

charles4339 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

charles4339

190 profile views
1 reviews

Review for Vestibular Disorders Association, Portland, OR, USA

Rating: 4 stars  

I am a 72 year old male, retired college professor. I have always been very active. On February 26, 2018 everything changed. That night I had a sudden, violent episode of spinning vertigo followed by intense vomiting. My wife called 911 and I was taken to the ER. After three MRIs and two CAT scans, nothing was found. I went home but I was unable to do much. Thankfully, the severe vertigo hasn't returned. I went to an ENT for tests. Nothing was found until I had a KNG test. It showed a 55% loss of function of my right inner ear balance nerve. I was told that it was likely caused by a virus infection. During the following year I had appointments with an ENT specialist and a neurologist in the Dallas, TX area. My diagnosis is vestibuIar neuritis and PPPD. I did go for special PT but that didn't help me. I was told to do as much strenuous activity as I could to build my strength and to improve my other senses. I was prescribed Zoloft and that has helped with the anxiety that is always there. I never feel right and share the same problems that others have described. I was told that there is no "cure". I function better after a good night's sleep and a day of rest between strenuous work days. I walk about 2 miles every other day, mow my yard, do gardening work and I have decided to start playing golf again. Even though I won't be able to play well anymore, at least it gets me out and socializing with friends who understand my situation. I hope to live an active life but I know things will never be exactly the same. We have to continue with life even when it is difficult. Good luck to all who experience these mysterious, vestibular problems.

Role:  General Member of the Public