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KimAKeenan

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1 reviews

Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA

Rating: 5 stars  

Our daughter, Rebekah, was born 20 years ago this month, and we were fortunate enough to get a diagnosis the day after she was born. Through research that one of our friends had done we found the CdLS foundation. We called before we left the hospital and were immediately enveloped with love, information and support! We have served as Awareness Coordinators and attended many small and large group events. It is absolutely amazing what this foundation is able to provide for these families. Every aspect of this journey with a special needs child is covered. No matter what your question is (medical, legal, educational, etc.) the foundation can point you in a direction that helps you find an answer, but most importantly, any time you interact with anyone the genuine love and concern that they have is evident in all that they do!! What a blessing this foundation has been for so long to so many!! The Keenans

Role:  Client Served