My Nonprofit Reviews

I have been a volunteer for MSU for around 4 years I was surprise they could even use me as a volunteer as I didn’t know much about Myositis at the time.
In September 2017, after a muscle biopsy I found out I had myositis, a short time later I was officially diagnosed with Necrotizing Autoimmune Myopathy (NAM). I couldn’t even dress myself or put on my shoes or socks. I was very scared what the future would be like wanting to feel independent not wanting my husband to do everything. I still feel very tired and weak at times but can walk on my own and can do my housework.
I’m thankful I found MSU it’s like a special family we have here. I’m thankful for the leadership we have.

It all started when i was hiking up a trail and my legs turned to rubber in cement I knew something was really wrong. I went though many doctors and even more testing In September 2017, after a muscle biopsy I found out I had myositis, then a short time later they officially diagnosed me with Necrotizing Autoimmune Myopathy (NAM), . Still doctors had no idea what I had or what to do. Going from doctor to doctor looking for answers I googled Myositis Support and was blessed with people who were knowledgeable, friendly and they educated me on the disease. I’m thankful for this support and friends I have made. We have one thing we all relate to a rare disease call myositis.