My Nonprofit Reviews
Kyle M.2
137 profile views
1 reviews
Review for Myositis Support And Understanding Association, Lincoln, DE, USA
Hello Greatnonprofits!,
I battled for a decade for a polymyositis diagnosis. No one would believe me. I was anti-JO1 positive with MRI findings but everything else was non contributive, "just" muscle pain, clumsiness and overwhelming fatigue. Without MSU to teach me about what JO1 meant, what to ask for, how to deal with doctors I can safely say I would not have made it.
Thanks MSU! Keep it up!
Best regards
Kyle
Role: Client Served
