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Vickimcc

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1 reviews

Review for The National Organization For Rare Disorders, Danbury, CT, USA

Rating: 5 stars  

NORD is an outstanding organization! The help that NORD provides to the 7000 rare disorder communities cannot be measured. We are currently talking with NORD about setting up a registry for our rare disorder. I attend NORD functions and interact with NORD staff, who are top notch. I have learned so much from NORD staff, other leaders I've met through NORD, and medical professionals I've met at NORD functions.

Role:  Board Member