My Nonprofit Reviews
Vickimcc
22 profile views
1 reviews
Review for The National Organization For Rare Disorders, Danbury, CT, USA
NORD is an outstanding organization! The help that NORD provides to the 7000 rare disorder communities cannot be measured. We are currently talking with NORD about setting up a registry for our rare disorder. I attend NORD functions and interact with NORD staff, who are top notch. I have learned so much from NORD staff, other leaders I've met through NORD, and medical professionals I've met at NORD functions.
Role: Board Member
