My Nonprofit Reviews

Our son Elijah was diagnosed at the age of 19 with BPAN. We had spent most of his life searching for a reason for his developmental delays and seizures. We were given diagnoses of autism, cerebral palsy, PDDNOS. Finally after new genetic testing we were given the correct diagnosis, but the outcome of this disease was extremely devastating. We found The NBIA and the wonderful doctors and researchers that have been working on finding a cure for this and other genetic disorders and they have given us hope and helped us find other families that are also dealing with this disease. Please know that a donation to the NBIA is bringing a cure for these illnesses closer everyday, and that we are thankful for.