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Jeff B.6

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1 reviews

Review for Choroideremia Research Foundation Inc, Springfield, MA, USA

Rating: 5 stars  

At the age of 27, I was diagnosed with CHM and told I would go completely blind and told there would never be a treatment. Now, at the age of 53...after 10 marathons, numerous speeches and fundraisers netting over $200,000, and serving on the Board of Directors and the Executive Committee of the CRF, there are several Clinical Trials happening and treatment is close. Most of the heavy lifting of the CRF is done by a small # of close-nit, kind and hard working people. I am proud to be a part of such a group!

Role:  Volunteer