My Nonprofit Reviews
Ashley B.7
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1 reviews
Review for Chromosome Disorder Outreach, Inc., Boca Raton, FL, USA
Our 20 month old son was diagnosed at 16 months with 47, XYY after so many delays and traits that showed up as something was not right. He is still undergoing genetic testing while I searched for any online information on the chromosome disorder that was updated (many online studies about it are from 10+ years ago and are very negative). I registered him on the CDO website and immediately received an email from them. They are very helpful and offered 20+ articles on XYY. I hope to help in some way, other families with XYY boys who may not know much about the disorder or may not know what to expect.
Role: General Member of the Public