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autonomicRN

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1 reviews

Review for Dysautonomia Support Network, Johnston, RI, USA

Rating: 5 stars  

I stumbled upon Dysautonomia Support Network a couple years after my initial dysautonomia diagnosis. At that point I felt lost, alone, and didn’t know where to turn. I joined as a member, not knowing what to expect and suddenly was surrounded by a brand new support system where everyone ‘got it’ and if I had a bad day there many people checking on me and sending best thoughts my way. I eventually joined the writers club and then began volunteering. Now I serve on our National Leadership Team and am the Medical, Clinical Liaison Team Coordinator as well as a Co-Leader on the Advocacy Team.

Role:  Volunteer