My Nonprofit Reviews

CFPhan
Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA
Formed 44 years ago by parents of and people with CF, CFRI has been a steady source of support for the CF Community. From facilitating access to professional counseling, to creating group support programs, educational conferences, podcasts covering a wide range of CF related issues, to funding basic scientific research that has provided the knowledge needed by the medical community and pharmaceutical industry to improve the treatment protocols and develop the medicines that have stretched the median CF age from the late teens when I became involved in 1982 to mid-forties now. It has taken, and still is taking, "A Village" to make this progress and CFRI has been a significant member of that Village.
A small, but focused, committed staff which, as they say, "Has skin in the game," either as a parent or relative of a CF person or close friend of such person. They have a highly vested interest in getting the most out of every hour volunteered and every dollar donated to the well being and steady enhancement of the CF Community. And CFRI has been VERY successful in achieving their goals!