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JSuico

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Review for Multiple System Atrophy Coalition, Charlotte, NC, USA

Rating: 5 stars  

After years of trying to find answers to his symptoms my 79 year old dad, Jesse, was diagnosed with Shy-Drager Syndrome, now called Multiple System Atrophy. His neurologist took me aside and told me that my dad would probably only live for another 6 months with this rare disorder. While researching and trying to find out more about this disease I found this wonderful group of people who were going through many of the same things my dad was. It was the only place to find answers to what was happening and everyone was so willing to help each other. There was always someone researching and finding the newest information as well as suggestions for caregiving. We could call the support line at any hour and find a friendly voice to help us. This was a tremendous help to our family. There were answers and others who really cared. I know that my dad would never have survived as long as he did without our association with the MSA Coalition. I will remain forever grateful for this organization and the dedication of so many. My dad was almost 92 when he joined the other MSA Angels. I am so thankful for those extra years made possible by this MSA Coalition. We had him all of those extra years! In that extra time my dad was able to meet his beloved great-granddaughter and namesake, Jessica.
Pam Bower, Vera James, Gary Rose, and Judy Biedenharn were just some of those educating all of us who were looking for answers. They continue to do so and have moved forward with many more ways to reach out and search for a cure.

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