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Erin W.2

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1 reviews

Review for Multiple System Atrophy Coalition, Charlotte, NC, USA

Rating: 5 stars  

The MSA Coalition was truly a life-saver. My mother lost her battle to Multiple System Atrophy in Dec 2016 , 4.5 years after her diagnosis. During that time the Coalition provided immeasurable support, advice, and resources. We are far from a cure to this nasty disease but my dad, brother, and I made it through with the support of these people.

With nowhere near the resources of the ALS or Parkinson's Foundations, the MSA Coalition made up of volunteers who really care. They want to keep on the fight for their loved ones that are no longer able to fight. The annual conference, live-streamed, is incredibly valuable to current patients, caregivers, and even for medical professionals who are still trying to understand the disease themselves. I look forward to seeing what the next couple of years bring.

Role:  Volunteer