My Nonprofit Reviews
Review for Multiple System Atrophy Coalition, Charlotte, NC, USA
My father was diagnosed with MSA-C in 2015, although presenting symptoms for years prior. My family and I had never heard of this condition and felt helpless given there is no cure. We devoted our time to finding the best doctors, best care team, the best methodologies for symptom management, and ultimately have been able to provide our father with the best of the best due to the MSA Coalition. The MSA Coalition has information, knowledge and a patient / caregiver / doctor community and network that provides both hope and resources to make this journey possible. We've learned to really live life and not hide from life due to circumstances. We appreciate this community, lean on this network, rely on the coalition and their support as much as possible. I urge anyone who is impacted by MSA to do the same. It has been life changing meeting not only meeting the folks who volunteer their time to the organization, but also all those involved in the community.